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Benjamin's Diary

A Journey of Growth & Hope

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 Benjamin S. Ha and Zion S. Ha were born as twin brothers on August 16, 2019, at Seoul National University Hospital. At birth, each weighed approximately 600 grams and were extremely premature. Emergent intubation was performed, followed by admission to the NICU. Despite their critical condition, they demonstrated remarkable resilience during their NICU stay.

 At the time, I was serving as a surgical fellow in the Department of Oral and Maxillofacial Surgery at Seoul National University Dental Hospital. I visited them daily, singing to them and praying for them.

 One night, Zion developed a tension pneumothorax, likely as a complication of early oral intubation. Initially, the severity of the situation was not fully recognized. Prolonged resuscitative efforts, including chest compressions, were performed for more than three hours. When I arrived, I immediately understood the clinical picture and asked whether I could put on surgical gloves to touch my son. With what seemed to be his remaining physical strength, Zion looked at me. I told him that I was there with him.

 Approximately an hour after my arrival, a surgical resident was called and performed re-intubation. However, his ventilatory status remained unstable. Within one to two weeks, we lost him. Later, upon reviewing the chest PA taken at that time, I observed a markedly deviated mediastinum consistent with tension pneumothorax.

 After Zion’s passing, I asked the attending pediatric fellow why CPR had been prioritized over immediate chest tube insertion, and futile attempt of FiO2 elevation and chest compression was continued over several hours during what is often considered the critical golden time. I also questioned why, once the decision -chest tube insertion, which was a life saving emergency measure- had been made, the chest tube was not inserted promptly by herself but instead she waited the arrival of a surgical resident for over an hour. Many further questions remained unspoken.

 Weeks later, a NICU professor requested a meeting with me. He asked whether I felt disturbed. Calmly, I asked him in my own surgical coat why the chest tube had been inserted so late. (I did not ask why the on-call surgeon arrived late, nor why the re-intubation had been performed imperfectly.) After several heavy minutes of silence, he said, “I’m sorry.” Following another pause, he added, “Very..very sorry. In fact...as you know..we do not have enough resources.”

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Always Feel Like Home. 까불이 벤자민. (2024. ENT ward,  Joongang University Hospital)

Benjamin the Holy Son of God

Genesis 49:22–26 (KJV)

22 Joseph is a fruitful bough, even a fruitful bough by a well; whose branches run over the wall:

23 The archers have sorely grieved him, and shot at him, and hated him:

24 But his bow abode in strength, and the arms of his hands were made strong by the hands of the mighty God of Jacob; (from thence is the shepherd, the stone of Israel:)

25 Even by the God of thy father, who shall help thee; and by the Almighty, who shall bless thee with blessings of heaven above, blessings of the deep that lieth under, blessings of the breasts, and of the womb:

26 The blessings of thy father have prevailed above the blessings of my progenitors unto the utmost bound of the everlasting hills: they shall be on the head of Joseph, and on the crown of the head of him that was separate from his brethren.

  This photo was taken just the day before the adenoidectomy GA procedure in 2024.

  One or two days after his discharge from the hospital, I screamed at him and cast him out of the bedroom into the darkness at night, when he woke up and cried due to the pain in his neck. It was all natural, and he had every right to do so.

  The same adenoidectomy was done for his older sister afterwards, following him. We served her like… the normal parents do to their elementary school kids after surgery.

  I ponder what on earth has made him SO STRONG despite of the "seemingly" blatant discrimination and ignorance from his care giver -More about it later. The quote has its meaning. But I don't want to protect my case here.-, SO DISTANT from self-pity. SO FULL O FLOVE. SO FULL OF MERCY on his imbicile dad. SO VIRTUOUS and NOBLE. I cannot find the answer but GOD.

  This diary is about how I have mistreated him and ignored him when he really needed the most intensive psychological attention and warmth from mom and dad. and also, this diary is about how he, the holy son of God, has perilously and graciously fought the fight in his virtuous manner. what a boy..

Benjamin’s Psyche

The intellectual things of life, tracking milestones of deep curiosity and a unique perception of the world.

Achievements & Discovery

A calm chronicle of the quiet victories, spiritual milestones, and the unique intellectual path chronicled in Benjamin's journey.

Medical Resilience

A diary of physical strength and recovery, finding hope in the smallest steps toward holistic well-being.

Benjamin’s Spirit

Capturing the profound moments where connection and spiritual peace intersect with daily developmental milestones.

Latest News

Finding Rhythm in the Quiet Moments

As Benjamin continues his journey, we've discovered that the smallest milestones often carry the most profound weight. This week's entry explores his new curiosity for textures and the peaceful moments that define our daily routine.

The Journey Archive

01 Intellectual Growth

Exploring the mental hurdles and intellectual triumphs of Benjamin’s unique development path.

02 Clinical Journey

Nurturing hope through scientific clarity and documenting medical breakthroughs along the way.

03 Spiritual Stillness

Finding grace in everyday moments and reflecting on the spiritual resilience discovered in silence.

04 Hope Collective

A curated space for parenting resources, community prayers, and wisdom from fellow travelers.

Moments of Growth

A visual chronicle of the milestones, the small victories, and the spiritual moments that define Benjamin's path.

Benjamin's Journey

MARCH 12, 2024

APRIL 05, 2024

First Steps and Firm Foundations

The Language of Spirit

Communication isn't always through words. We've discovered a beautiful silent language in our daily rituals and shared moments.

Watching Benjamin take his first independent steps was a moment of pure hope and reflection on growth and steady progress.

MAY 20, 2024

Milestones in Mindfulness

JUNE 15, 2024

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The Path Forward

As we look to the coming months, every small victory feels like a leap of faith towards a brighter, more hopeful future for our family.

Finding calm in the chaos. Benjamin's progress in quiet observation has taught us all to slow down and appreciate the present.

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